1001Smiles.com: How a little boy who lost his own life ended up giving life-changing surgery to 1,000 suffering children...

The subject matter below is upsetting and may not be appropriate for under-age persons, however, it is too important to share. To omit this would be an injustice to his memory.

This is Sean's story: the tragic chain of events which he endured and that led to his legacy which provided free, cleft palate surgery to so many disabled, desperately poor children.

 

Sean's Story / Medical Mishaps Narrative

 

 

 

Sean Denlinger was a gentle and loving special-needs toddler who deeply affected all who met him.

 

Before the events described below, he had already undergone several successful surgeries after his birth at other hospitals (all pre-planned due to his genetic condition and all with no major complication or re-admissions).

 

After two years of home therapy he was finally able to enter preschool.

 

Sean's family was very happy at his finally reaching this new beginning.

 

                                                   Dear MD,

Please don't ever let this happen again.

                                              Love, Sean

 

During the course of managing common issues with his feeding tube, Sean went to JDCH (children's hospital in Broward County, FL) to have a pediatric surgeon pull out and replace a small "PEG"-type feeding tube that had recently been installed into Sean's stomach.

  • This feeding tube switch was considered to be a minor, non-surgical procedure, but removal of these tubes occasionally cause stomach damage/leaks, so research recommends a radiology test before feeding.

Despite signs of pain in the outpatient recovery room after his tube removal (enough pain to require narcotics),  Sean was sedated with Codeine and sent home with no radiology study- despite parental concerns.     

 

Sean had suffered a dangerous internal stomach leak, but since it was not immediately detected, he was then further endangered by leakage of feeds into his abdomen causing infection (peritonitis).

 

Worried calls from home that night were met with little action. Fearing worsening symptoms, mom herself decided to rush Sean to the JDCH emergency room.

 

 

Despite Sean's visible symptoms of peritonitis (swollen hard abdomen, rapid heartbeat, fever, etc.) noted upon arrival in the ER, the doctor allowed / used Barium contrast fluid during radiology test(s).

  • According to published medical research and expert opinion rendered, Barium should be avoided where a stomach leak may be present, as internal barium leakage can cause dangerous systemic/organ damage.

To worsen matters, these films of Sean's internal stomach leak had been misdiagnosed, and vital abdominal surgery to clean out the leaking Barium and food was delayed. This delay, according to expert opinion- caused catastrophic systemic/organ damage.

 

Sean finally received that major abdominal surgery, but days after said surgery and while he was still dangerously ill- stool (feces) began leaking out through his large abdominal surgery wound; his intestine had ruptured internally. This is a known complication after internal infection, contamination by abrasive barium and invasive surgery.

 

Sean, still critical from internal infection and barely recovering from the above abdominal clean-up surgery, was immediately subjected to a 2nd traumatic open surgery to close up the stool leak. Somehow, Sean survived the operation.

 

Several days after this 2nd surgery, stool was again seen leaking out through his abdomen. Sean's family was devastated.

 

Rather than allowing a 3rd surgery at this hospital, Sean's parents transferred him via air ambulance to a major US hospital for help.

 

What followed was a cascade of tragic complications that could not be stopped by doctors at two internationally-ranked hospitals who sheltered Sean's entire family and tried fervently to save him- first at Cincinnati Children's hospital for five months, then back home at Miami Children's hospital for the final six months.

 

During the course of his hospitalization, persistent internal infection caused Sean's surgical wound to completely burst open, and it could not be closed surgically. His family members lived in his hospital rooms to comfort Sean literally every minute of that almost full year.

 

To ease Sean's anxiety: both parents were taught, and permitted by his Cincinnati and Miami surgeons- to perform Sean's traumatic open wound dressing changes (several times daily) for almost 10 months.

 

The added complications and surgeries/procedures suffered by Sean during those months are too painful to describe any further.

 

After an agonizing yearlong hospitalization, 3-year-old little Sean suffered a final, overwhelming internal infection, which triggered severe swelling that caused his still-closing abdominal wound to completely burst open, again, before his parents' eyes. 

 

He was taken off life support two weeks later. 

 

Later expert medical opinion indicated Sean's death had been caused by the initial medical mishap(s) at JDCH.

 

He had only gone in for a 5-minute feeding-tube change.

 

 

 

During the above events and malpractice lawsuit that followed, Sean's family was subjected to disheartening legal manuevers rather than apologies...

 

Despite the pain of litigation, Sean's family persisted in order to have the truth unearthed and more importantly to win a settlement that could be used to help other children and ensure that Sean had indeed not died in vain.

 

Both wishes were realized.

 

Proceeds from the settlement were allocated by Sean's family to provide free cleft lip/palate surgery to 1,000 suffering children through the Smile Train cleft surgery charity.

 

No one from the Joe DiMaggio Children's Hospital has EVER apologized.

 

 

 

 

 

 

 

 

 

This website is privately hosted/maintained; the personal events reported on this particular webpage/link is strictly shared by

private citizens and is not in any way affiliated with, or representative of the views of anyone at, Smile Train charity.

 

 

 

1001 Smiles:  shares the story of how little Sean Denlinger, victim of alleged malpractice, saved 1,000 children through his "1001 Smiles" project.